A-T Caregiver Handbook

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A-T Information from the Handbook for Families and Caregivers

• Overview

• The Gene (A-T) and its Gene Product (ATM)

• Inheritance

• Neurology Problems

• Immunodeficiency

• Immune System in A-T

• Gamma Globulin

• General Care During Infections

• Specific Illnesses

• Respiratory Illness

• Chest Postural Drainage

• Gastrointestinal Illness

• Causes of Lung Disease and Respiratory Symptoms

• Monitoring Lung Function and Diagnostic Studies

• Treatment and Prevention of Lung Disease in A-T

• Feeding and Swallowing

• Feeding and Swallowing Difficulties

• Eating and Drinking

• Cancer and Risk of X-ray Exposure in A-T Patients

• Cancer and Risk of X-ray Exposure in A-T Carriers

• General Principles of Rehabilitation

• Mobility and Gross Motor Abilities: The Role of Physical Therapy

• Mobility: Physical Therapy Recommendations

• Occupational Therapy for A-T

• Occupational Therapy Recommendations

• Activities of Daily Living

• Home Environment

• Higher Level Activities of Daily Living

• School and Learning

• Social/Emotional Adjustment

• Speech and Language

• Speech and Language Recommendations

• Assistive Technology - General Findings

• Keyboard Adaptations

• Mouse Control Options

• Visual Adaptations

• Reading and Writing

• School Programming for Students with A-T

• Developing an Individual Education Program (IEP)

• Americans with Disabilities Act (ADA)

• Individuals with Disabilities Education Act (IDEA)

• Section 504 of the Rehabilitation Act

• Glossary