Caring for Someone with A-T
Families and other caregivers can find information to help care for individuals with A-T. Since A-T is a rare disease, it can be difficult to find comprehensive information on how to best manage an A-T patient's health. The A-T Children's Project has been funding specialized clinical evaluations for A-T since 1995, and much of the information found here is a result of the hundreds of families who have been a part of this effort.
We would like to keep in touch with all A-T families so that we can help. From time to time, we reach out with important information about A-T or announcements about clinical studies and trials to help further research.
The A-T Children's Project established and continues to fund this clinic through the grassroots efforts of families and friends.
Oncologists at St. Jude have developed specialized protocols to treat people with A-T who get cancer.
The Handbook has comprehensive medical, scientific, therapeutic, and school-related information from experts.
This card highlights important information about caring for someone with A-T for emergency room, urgent care, or other healthcare professionals. Please contact the A-T Children's Project if you would like copies sent to you.
Questions or Comments? Please contact our Family Support Coordinator, Rosa Fernandez.