Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat.
ABOUT ATAXIA-TELANGIECTASIA
Ataxia-telangiectasia, or A-T, is a rare genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a high rate of cancer.
Caring for People with A-T
Find a 16-page handbook covering topics including neurology, managing lung health, immunology, vaccine schedules, cancer, and school recommendations. Since A-T is a rare disease, it can be difficult to find comprehensive information on how to best manage an A-T patient’s health. The A-T Children’s Project has been funding specialized clinical evaluations for A-T since 1995, and much of the information found here is a result of the hundreds of families who have been a part of this effort.
Mission Statement
The Ataxia Telangiectasia Children’s Project, better known as the A-T Children’s Project, was founded in late 1993 by a family in Florida with two sons who have A-T. It is a public, tax-exempt, non-profit organization pursuant to Section 501(c)(3) of the Internal Revenue Code, and all gifts and donations to the Project are tax deductible. The A-T Children’s Project was formed to raise funds through events and contributions from corporations, foundations and friends. These funds are then used to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia.
Our Mission
To encourage and support excellent laboratory research which will accelerate the discovery of a cure or possible therapies for ataxia-telangiectasia by:
- Awarding competitive research grants to top scientists using a peer-review board comprised of top scientists and physicians
- Organizing and sponsoring workshops and symposiums in order to encourage cooperation among laboratories and to generate new research strategies
- Working with Congress and the National Institutes of Health to encourage the funding of active research on A-T by agencies of the U.S. government.
And:
- To improve the accurate and timely diagnosis of A-T patients by increasing public awareness and by educating physicians.
- To develop and maintain an international patient registry of A-T patients with objective, neutral oversight, while leaving ultimate control in the hands of treating physicians, so that up-to-date clinical information about A-T patients can be obtained for researchers and so that when a treatment is developed, all patients can be reached through their physicians.
- To support and oversee a clinical center and information clearinghouse at a top-rated, world-class medical center for the evaluation of A-T patients by a multidisciplinary team of specialists, and for the accumulation of experience in managing the many facets of A-T such as the ataxia, cancer and immune problems.
- To develop quantitative endpoints for objectively measuring the progression rate and severity of the symptoms of A-T.
- To maintain and enlarge a tissue/cell bank with objective, neutral oversight and control in order to ensure free access of existing and new researchers to A-T patient specimens.
Get Involved:
Message from Our Founders
Anyone whose life is touched by ataxia-telangiectasia is changed forever. Whether the patient diagnosed is your child — or your niece, nephew, grandchild or friend — old assumptions have to be discarded and new realities accepted. The world is suddenly changed, and the future is most uncertain. It is time for making adjustments — physical and psychological — many of them agonizingly difficult.
At the A-T Children’s Project we understand how you feel. When two of our sons were diagnosed in 1993 we responded to our personal experience by forming this organization and making a commitment to change that uncertain future, aiming at nothing less than a cure for A-T.
Brad and Vicki Margus
What Our Donors Say:
Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua.