Organizations around the world are working to increase awareness, provide information to families, and work toward finding a cure.
- Australia – BrAshA-T
- Brazil – Projeto AT/Brasil
- Europe – AT Europe
- France – Association Pour la Recherche sur l’A-T (APRAT)
- Germany – A-T info from doctors in Frankfurt
- Germany – A-T info from German A-T Family Group
- India – Email the Ataxia Foundation at ataxiaindia@gmail.com
- Israel – Association for Fighting A-T Disease
- Italy – National Ataxia Telangiectasia Association
- Japan – Ataxia Telangiectasia Project
- The Netherlands – Stichting A-T and Twan Foundation
- Norway – AT-Norge (AT- Norway)
Family Support: Bent Are Roenstad - Poland – Razem Zdazymy (Together We are in Time)
- Spain – Asociacion Espanola Familia Ataxia-Telangiectasia (AEFAT)
- United Kingdom (UK) – A-T Society and Action for A-T