Organizations around the world are working to increase awareness, provide information to families, and work toward finding a cure.
- Japan – Ataxia Telangiectasia Project
- The Netherlands – Stichting A-T and Twan Foundation
- Norway – AT-Norge (AT- Norway)
Family Support: Bent Are Roenstad
- Poland – Razem Zdazymy (Together We are in Time)
- Spain – Asociacion Espanola Familia Ataxia-Telangiectasia (AEFAT)
- United Kingdom (UK) – A-T Society and Action for A-T