Anyone whose life is touched by ataxia-telangiectasia is changed forever. Whether the patient diagnosed is your child — or your niece, nephew, grandchild or friend — old assumptions have to be discarded and new realities accepted. The world is suddenly changed, and the future is most uncertain. It is time for making adjustments — physical and psychological — many of them agonizingly difficult.
At the A-T Children’s Project we understand how you feel. When two of our sons were diagnosed, we responded to our personal experience by forming this organization and making a commitment to change that uncertain future, aiming at nothing less than a cure for A-T.
Brad and Vicki Margus