Ataxia-Telangiectasia “ay-TACK-see-uh tel-LAN-jick-TAY-sha” A-T may be very rare, but an incredibly dedicated group of friends and families are working together to accelerate research in our efforts to find life-improving therapies and a cure. Help us find a cure for A-T by making a one-time donation or a monthly gift. Unlock $100 for the A-T Children’s … Read More
Rylie Rahall is a fun-loving 11-year-old from Southern California with A-T. Every February, she and her family host a Rare Disease Day event at her school. When it was clear that the pandemic was going to make an in-person Rare Disease Day event impossible this year, the Rahalls pivoted to a virtual workout class. The … Read More
We are excited to announce that we are selling new shirts for Rare Disease Day 2021, coming up on February 28th. Read More
Thank you for helping kids like Brian in the fight to cure A-T! To our A-T CureTeam, We are thrilled to have you join us in the 2021 Walt Disney World virtual races! I am Lauren Domitrovits, proud mother of Brian (9) and Andrew (6). Brian will be turning 10 – double digits – on December 29th! … Read More
It’s #GivingTuesday! We are so grateful that an anonymous donor has agreed again this year to match the first $50,000 in donations from now through Friday, December 4th! The pandemic has made 2020 horribly difficult for everyone, including our wonderful volunteers who have been unable to run many of the fundraising events we normally rely … Read More
Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure . . . a virtual … Read More