Working Together to Cure A-T – It’s Rare Disease Day!

Ataxia-Telangiectasia “ay-TACK-see-uh tel-LAN-jick-TAY-sha” A-T may be very rare, but an incredibly dedicated group of friends and families are working together to accelerate research in our efforts to find life-improving therapies and a cure. Help us find a cure for A-T by making a one-time donation or a monthly gift. Unlock $100 for the A-T Children’s … Read More

Intrabio – Clinical Trial Expansion

On February 16, 2021, the A-T Children’s Project sent the below email to A-T families in the United States announcing that the pharmaceutical company IntraBio has expanded their clinical trial to test N-Acetyl-L-Leucine in A-T patients, and we will be helping with recruitment.  Dear A-T Parents, Last year, we let you know that the A-T … Read More

COVID-19 Vaccines and A-T

Additional information on COVID-19 vaccines and A-T can be found here. Hi A-T Parents, As promised, we are getting together for a discussion about COVID-19 and vaccines. The A-T Children’s Project has planned a special webinar that I will be moderating: COVID-19 Vaccines and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director … Read More

Making Strides in A-T Research – Thanks to You

Dear Friends, This past year has been difficult for so many people. Every A-T family I have spoken with has been enormously grateful that, thanks to many of you, research has continued, providing the hope that sustains us. Here’s a quick look at our efforts this year: With the start of our antisense oligonucleotide (ASO) … Read More

Giving Tuesday 2020

It’s #GivingTuesday! We are so grateful that an anonymous donor has agreed again this year to match the first $50,000 in donations from now through Friday, December 4th! The pandemic has made 2020 horribly difficult for everyone, including our wonderful volunteers who have been unable to run many of the fundraising events we normally rely … Read More

Flu Season is Coming

Dear A-T Families, The flu season is coming, and October is the time to get the flu vaccine. Dr. Howard Lederman, Director of the A-T Clinical Center at Johns Hopkins Hospital in Baltimore, Maryland recommends that all people with A-T receive the killed (injected) influenza (flu) vaccine every fall. Household members should also be vaccinated … Read More

Virtual 5K Race Series

Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure . . . a virtual … Read More

COVID-19 and Ataxia-Telangiectasia: Part 3

A-T Parents, As promised, we are hosting another discussion about COVID-19 as the school year will be starting soon. The A-T Children’s Project is planning a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 3 – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins … Read More