To Our 2021 Disney Runners

Thank you for helping kids like Brian in the fight to cure A-T! To our A-T CureTeam, We are thrilled to have you join us in the 2021 Walt Disney World virtual races! I am Lauren Domitrovits, proud mother of Brian (9) and Andrew (6). Brian will be turning 10 – double digits – on December 29th! … Read More

Giving Tuesday 2020

It’s #GivingTuesday! We are so grateful that an anonymous donor has agreed again this year to match the first $50,000 in donations from now through Friday, December 4th! The pandemic has made 2020 horribly difficult for everyone, including our wonderful volunteers who have been unable to run many of the fundraising events we normally rely … Read More

Virtual 5K Race Series

Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure . . . a virtual … Read More

We need your 26!

The United Kingdom has come up with a “BRILLIANT” idea for something charities can do in the midst of this terrible COVID-19 environment to ensure that fund raising for important causes continues. And a wonderful organization based in England, Action for A-T, has encouraged our global community of A-T families, volunteers, donors and friends to … Read More

Rare Disease Day 2020

We are excited to announce that we are selling six new shirts for Rare Disease Day 2020,  coming up on February 29th. We’ve chosen the Be Brave, Be Strong, Be Proud slogan this year as a testament to the fortitude of A-T families. The shirts are available starting today in both grey and white at … Read More

Thanks to you, we did it!

  Thank you for your amazing generosity on #GivingTuesday this year! It’s astounding what can happen when we pull together to help find a cure for A-T. For #GivingTuesday, we started off slowly, but a surge of kindness just before the deadline enabled us to maximize the $50,000 matching gift, doubling the impact of your … Read More


What an incredible response we had to the Bill and Lydia Addy “Double Match” campaign! We are pleased to report that, with your help, we quickly received donations to cover the entire $125,000 that Bill and Lydia Addy had offered to match 2-to-1 on donations received by May 9th. As a result, combined with their … Read More


On February 28, friends and families of A-T kids across the U.S. and Canada raised funds for A-T research by celebrating Rare Disease Day, as part of the Global Genes Project’s Jeans for Genes program, a national effort to increase awareness for the more than 7,000 rare diseases that affect children. A-T Children’s Project volunteers … Read More