Videos Needed: A-T and Dystonia
Researchers are interested in testing a new device that has the potential to help a specific movement difficulty called dystonia that is seen in some people with A-T. Dystonia causes involuntary muscle contractions which can result in abnormal twisting or repetitive movements, leading to awkward postures or tremors. If someone with A-T does develop dystonia, it usually appears during the teen or adult years, but it can show up earlier.
If your family member with A-T has dystonia and you would like to learn more about potential ways to treat it, please complete this brief form and upload a video. The video should show the specific dystonia symptoms that, if improved, would make a meaningful difference.
If you have trouble uploading a video or using this form, please contact us at 954-481-6611 or email@example.com.