Hi, My name is Avedis. I was diagnosed with A-T in January 2009. I may look a little different on the outside because I use a walker (my crocodile) and “wobble” a lot, but on the inside I am like any other boy my age. My favorite foods are mac and cheese and chocolate milk. I like to ride my power wheels, go to the park, play Wii, go to cub scouts, and tease my sister and brother. I like to read, listen to music, and I especially love all things Disney. When I grow up I want to be a chef and ride a blue motorcycle. My family and I hope you are able to help us find a life changing treatment or cure for me; & all of the others who live with A-T.


We’re asking you to be part of our Giving Circle by donating $10 or more a month using the donation form below. Your monthly gift will help maintain a constant means of support for research funding. The advancements we have made and are making can be attributed to the families and friends like you who generously support our mission to find life-improving therapies and a cure for A-T. Every dollar raised is a dollar filled with hope.

Our Giving Circle donors will receive:

  • A listing here on our Giving Circle webpage
  • Special updates
  • A yearly tax receipt
  • The satisfaction of knowing that your dollars are hard at work


Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer. Children with A-T are usually confined to wheelchairs by age 10 and often do not survive their teens. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.