Hi….my name is Dylan. I will be 10 years old. I am in fourth grade & love football. I know most of the Cleveland Browns players by name & watch their games on TV. I love to play Angry Birds. I love Harry Potter and Star Wars. I was diagnosed with A-T when I was 3. I don’t really know what this disease is, I just know I get tired, wobble, & sometimes my legs won’t do what I want. When I go to school, I now use a wheelchair…we call it speedy. I see lots of doctors at the Cleveland Clinic & Johns Hopkins. My brother Sean is 5. He also has A-T. He is very smart, very good with puzzles & likes to play football, too.
A-T is very complex & very rare. A-T is the “orphan” of orphan diseases, so we do not receive government research funds that other diseases do. It has various facets: destruction of the cerebellum; immune deficiencies which lead to various complications; cancer. Because of its complexity, the disease manifests itself in each child a bit differently. However, every child with A-T ends up in a wheelchair, usually by age 10.
25 years ago the life expectancy of an A-T child was 13. Today, because research has provided protocols to treat cancer & other complications, life expectancy is the early 20s. We would like to one day find a cure…but we cannot do that without your help. Please consider giving $10 a month or more, if possible. We will make sure that the funds go to good use. You can read more about A-T here on the website
OUR GIVING CIRCLE
We’re asking you to be part of our Giving Circle by donating $10 or more a month using the donation form below. Your monthly gift will help maintain a constant means of support for research funding. The advancements we have made and are making can be attributed to the families and friends like you who generously support our mission to find life-improving therapies and a cure for A-T. Every dollar raised is a dollar filled with hope.
Our Giving Circle donors will receive:
- A listing here on our Giving Circle webpage
- Special updates
- A yearly tax receipt
- The satisfaction of knowing that your dollars are hard at work
WHAT IS A-T?
Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer. Children with A-T are usually confined to wheelchairs by age 10 and often do not survive their teens. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.
Our current monthly donors:
Mike Nadolski Sr.
Derek and Jennifer Sutcliffe
Dennis and Mary Sutcliffe