Disneyland Half Marathon Weekend is Back!
Have you heard the news? Disneyland Half Marathon Weekend in Anaheim, CA is back and the A-T CureTeam will be there in January 2024! Read More
Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research
The A-T Children's Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics: Read More
Giving Tuesday 2022
Dear Friends of the A-T Children’s Project, Giving Tuesday is tomorrow, and an anonymous donor has offered to match the first $50,000 in donations we receive! Please consider donating as we need your support more than ever. Why especially now? So that we can seize opportunities that have emerged from the remarkable progress we’ve seen … Read More
Until There’s a Cure, There’s Hope!
The holidays are quickly approaching and this year’s A-T Children’s Project holiday shirts are in! Purchase one for yourself and your loved ones to show what we hope for this holiday season and every season – a cure for A-T! https://www.bonfire.com/at-hope/ Cotton long sleeve and short sleeve shirts are available in both adult and youth … Read More
Vaccine Recommendations for A-T Families
Dear A-T Families, We wanted to share with you some expert advice we have been given about the vaccinations that our families should receive. The flu season is coming, and now is the time to get the flu vaccine. Dr. Howard Lederman, a respected immunologist and the Director of the A-T Clinical Center at Johns … Read More
Drug Repurposing Screen for A-T Reaches Important Milestone
Charles River Lab, a drug development services company collaborating with the A-T Children’s Project, has succeeded in developing a laboratory test or “assay” to rapidly evaluate thousands of approved drugs to learn if some of them can be repurposed for A-T. Because drugs emerging from the screening process with promising results will have already been … Read More
Oncologist with A-T Expertise to Advise Local Cancer Doctors
Dr. Richa Sharma, an oncologist at St. Jude Children’s Research Hospital who focuses on DNA repair disorders like A-T, has become available to consult with local doctors as they plan treatments for A-T patients who have developed cancer. Approximately 30% of people with A-T develop cancer. Lymphomas and leukemias (lymphoid cancers) are by far the … Read More
Join Us in June!
Whether you golf, run, bike or shop there is an A-TCP fundraising event happening for you! It is truly INCREDIBLE for such a rare disease to have so many events happening around North America. See if any events this month are in your area. Read More
Promising Study Finds Ways to Measure A-T
Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the families, and, of course, to our donors and fundraisers who help to make it all … Read More
Help Accelerate A-T Research
As we head into 2022, research to find treatments for ataxia-telangiectasia (A-T) is moving more swiftly than ever. Please help us maintain momentum by making a year-end donation. Researchers at Boston Children’s Hospital are now treating a little girl with A-T using antisense oligonucleotide (ASO) gene therapy and will soon be expanding their testing to more children. … Read More