Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the families, and, of course, to our donors and fundraisers who help to make it all … Read More
As we head into 2022, research to find treatments for ataxia-telangiectasia (A-T) is moving more swiftly than ever. Please help us maintain momentum by making a year-end donation. Researchers at Boston Children’s Hospital are now treating a little girl with A-T using antisense oligonucleotide (ASO) gene therapy and will soon be expanding their testing to more children. … Read More
Sent December 22, 2021 Dear Friends, Your donation helped push us over the top, maximizing the $65,000 #GivingTuesday match! It is truly amazing – that in a year filled with cancelled in-person events and struggles getting back to normal, A-T research continues because of generous donations like yours on #GivingTuesday. You should feel great that … Read More
Dear A-T Families, The flu season is coming, and October is the time to get the flu vaccine. Dr. Howard Lederman, Director of the A-T Clinical Center at Johns Hopkins Hospital in Baltimore, Maryland recommends that all people with A-T receive the killed (injected) influenza (flu) vaccine every fall. Household members should also be vaccinated … Read More
The A-T Children’s Project is helping to recruit for a genetic counseling capstone research project. Julia Schiller is a genetic counseling masters student at Boston University School of Medicine. We are excited that she has chosen A-T for her study because it will help raise awareness about A-T in the genetic counselor population. Please find … Read More
On August 12, 2021, the A-T Children’s Project hosted a special webinar on COVID-19 and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins Children’s Center Jennifer Thornton – Executive Director of the A-T Children’s Project Watch Replay Now Take Covid Surveys … Read More
Dear Friends, I hope you and your families are remaining safe as Covid continues to throw new challenges at us. While the pandemic has made funding and operating the A-T Children’s Project vastly more difficult, we’re continuing to drive forward innovative research, knowing that our kids will keep deteriorating a little bit each day until … Read More
On June 9, 2021, the A-T Children’s Project sent the below email to A-T families about COVID-19 vaccines and antibody testing. The email asked families to fill out a brief survey if their family member with A-T had been vaccinated or been infected with COVID-19. Read More
Father’s Day is almost here and we have a great gift for dads, grandpas and uncles – an A-T Children’s Project baseball cap! Not only are these caps adjustable and 100% cotton chino twill, they are embroidered with the A-T Children’s Project logo to spread awareness. PURCHASE NOW In honor of dads everywhere, please enjoy … Read More
