Thank you for helping kids like Brian in the fight to cure A-T! To our A-T CureTeam, We are thrilled to have you join us in the 2021 Walt Disney World virtual races! I am Lauren Domitrovits, proud mother of Brian (9) and Andrew (6). Brian will be turning 10 – double digits – on December 29th! … Read More
It’s #GivingTuesday! We are so grateful that an anonymous donor has agreed again this year to match the first $50,000 in donations from now through Friday, December 4th! The pandemic has made 2020 horribly difficult for everyone, including our wonderful volunteers who have been unable to run many of the fundraising events we normally rely … Read More
Dear A-T Families, The flu season is coming, and October is the time to get the flu vaccine. Dr. Howard Lederman, Director of the A-T Clinical Center at Johns Hopkins Hospital in Baltimore, Maryland recommends that all people with A-T receive the killed (injected) influenza (flu) vaccine every fall. Household members should also be vaccinated … Read More
Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure . . . a virtual … Read More
A-T Parents, As promised, we are hosting another discussion about COVID-19 as the school year will be starting soon. The A-T Children’s Project is planning a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 3 – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins … Read More
A-T Parents, It’s time for another discussion about COVID-19 as communities reopen and parents consider how and when their families can safely return to work and school. The A-T Children’s Project has planned a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 2 – a conversation with: Howard Lederman, MD, PhD – … Read More
Hi everyone, I hope you and your families are continuing to stay safe during the pandemic. Over the past year, you’ve heard me talk a lot about testing an approach called antisense oligonucleotide (ASO) gene therapy in a little girl with A-T. She has continued to receive regular injections, and we’re grateful that we haven’t … Read More
To Our A-T CureTeam, We hope that you all are staying safe and healthy! The world may now seem to be at a halt, but A-T research and fundraising continues. Our fight for a cure remains a crucial priority while we all navigate an unprecedented time. With an optimistic outlook, we are opening registration for … Read More
A-T Parents, While we are not aware of anyone with A-T in the world who has contracted COVID-19, the situation in our communities definitely impacts A-T families as they stay home to keep safe. To help families navigate this new normal, the A-T Children’s Project hosted a special webinar on Tuesday April 28th: COVID-19 and … Read More
The United Kingdom has come up with a “BRILLIANT” idea for something charities can do in the midst of this terrible COVID-19 environment to ensure that fund raising for important causes continues. And a wonderful organization based in England, Action for A-T, has encouraged our global community of A-T families, volunteers, donors and friends to … Read More
