Dear A-T Families, The flu season is coming, and October is the time to get the flu vaccine. Dr. Howard Lederman, Director of the A-T Clinical Center at Johns Hopkins Hospital in Baltimore, Maryland recommends that all people with A-T receive the killed (injected) influenza (flu) vaccine every fall. Household members should also be vaccinated … Read More
Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure . . . a virtual … Read More
A-T Parents, As promised, we are hosting another discussion about COVID-19 as the school year will be starting soon. The A-T Children’s Project is planning a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 3 – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins … Read More
A-T Parents, It’s time for another discussion about COVID-19 as communities reopen and parents consider how and when their families can safely return to work and school. The A-T Children’s Project has planned a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 2 – a conversation with: Howard Lederman, MD, PhD – … Read More
Hi everyone, I hope you and your families are continuing to stay safe during the pandemic. Over the past year, you’ve heard me talk a lot about testing an approach called antisense oligonucleotide (ASO) gene therapy in a little girl with A-T. She has continued to receive regular injections, and we’re grateful that we haven’t … Read More
To Our A-T CureTeam, We hope that you all are staying safe and healthy! The world may now seem to be at a halt, but A-T research and fundraising continues. Our fight for a cure remains a crucial priority while we all navigate an unprecedented time. With an optimistic outlook, we are opening registration for … Read More
A-T Parents, While we are not aware of anyone with A-T in the world who has contracted COVID-19, the situation in our communities definitely impacts A-T families as they stay home to keep safe. To help families navigate this new normal, the A-T Children’s Project hosted a special webinar on Tuesday April 28th: COVID-19 and … Read More
The United Kingdom has come up with a “BRILLIANT” idea for something charities can do in the midst of this terrible COVID-19 environment to ensure that fund raising for important causes continues. And a wonderful organization based in England, Action for A-T, has encouraged our global community of A-T families, volunteers, donors and friends to … Read More
A-T Parents, Hope you and yours are keeping safe and well! With schools across the United States and Canada closed, A-T parents are stepping up to manage homeschooling their kids.To help parents navigate this new normal, the A-T Children’s Project hosted a special webinar on Saturday, April 18th. Over 50 families tuned in as A-T … Read More
Hi everyone, I hope you and your family are doing well and keeping safe. As much as the COVID-19 pandemic has changed our world, I wanted to let you know that our ASO gene therapy trial for A-T – that you helped make possible – has not stopped. It continues forward, bringing hope to many … Read More
