HELP Michelle FIND A CURE FOR A-T!

Donate Now Register Now Search Participants
  Unable to donate online?  Print  a donation form to send a check.


FAMILIES AND FRIENDS RACING TO FIND A CURE.

Bafunno Twins Fundraising Page
Hello!

The Bafunno twins (Danielle and Michelle) are at it again! We have both been running road races in honor of our nephew, Max, son of Beth Fiest Boryenace and Adam Boryenace. For each race we are matching our entry-fee as a donation to the A-T Children's Project.

ATCP funds research and development for a rare genetic disease called Ataxia-telangiectasia, also known as "A-T". Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer. A-T is aggressive, degenerative, and terminal. Children with A-T are usually confined to wheelchairs by age 10 and often do not survive their teens. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.

Our nephew, Max, was formally diagnosed with A-T in October 2012, after a year of medical exams, evaluations and tests. Max is a brilliant and savvy little 5 year old who inspires and delights everyone who is fortunate enough to know him. Max’s teachers and caregivers make frequent comments about the smiles he brings to their faces and how he is remarkably smart. Right now, Max has difficulty with physical tasks we all take for granted, like walking or sitting. He has learned how to fall with grace and protect himself in the process. While Max can get around now, this capability will diminish over time and he will likely end up wheel chair bound. While Max will maintain his sense of humor and intelligence, he’ll have a hard time living a “normal” life due to all of the symptoms associated with A-T. As he progresses through life, he will likely need full-time care. Our only hope for Max, due to the rarity of this disease, is raising awareness and supporting research to find a cure and develop therapy and treatment for it.

You can find more information at http://en.wikipedia.org/wiki/Ataxia_telangiectasia, which is updated by the A-T Clinical Center at Johns Hopkins Hospital (funded by ATCP).

ATCP is a non-profit organization, and your donation will go directly to research and raising awareness. Donations to ATCP are tax deductible.
You can make your donation at the top of this page (click the Donate Now button) and keep track of our progress!

Thank you again for all of your love and support! We hope 2016 is a year of blessings and good health for you & your loved ones!

WHAT IS A-T?

Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer. Children with A-T are usually confined to wheelchairs by age 10 and often do not survive their teens. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.

 
 
My Sponsors
NameDateComments
Dan B. 4/15/2017
Joe M. 4/4/2017
Lindsay M. 4/1/2017
Dan B. 3/15/2017
Lindsay M. 3/1/2017
Dan B. 2/15/2017
Ellis W. 2/11/2017 HAPPY BIRTHDAY GRANDMA MARILYN!!!
Lindsay M. 2/1/2017
Dan B. 1/25/2017 In Memory of Charlie Kishbaugh (Please send a note to Bob Kishbaugh, 434 Yost Hollow Road, Berwick, PA 18603)
Dan B. 1/25/2017 In Memory of Helen White (Please send a note to Melissa Hudzik, 2343 Knollwood Avenue, Poland, OH 44514
Dan B. 1/15/2017
Lindsay M. 1/1/2017
Sarah S. 12/31/2016 Happy New Year!
Patricia K. 12/31/2016
Donna A. 12/30/2016 In honor of Marilyn's retirement from CRS.
Daniel R. 12/30/2016 Marilyn Bafunno
Lindsay M. 12/1/2016
Ellis W. 11/24/2016 Make it a very Happy Max-giving!!
Dan B. 11/1/2016
Lindsay M. 11/1/2016
Frank and Patricia K. 10/16/2016 We want to make this donation in momory of our Son
Dan B. 10/1/2016
Lindsay M. 10/1/2016
Cindy J. 9/22/2016 Happy Birthday, Danielle!
Marilyn B. 9/21/2016 Happy birthday twinnies!!!
Jeff and Annette H. 9/21/2016
Anonymous 9/21/2016 For the Bafunno Twins
Colette K. 9/20/2016
Leslee R. 9/20/2016
Fidelity Charitable Gift Fund 9/19/2016
Dan B. 9/1/2016
Lindsay M. 9/1/2016
Tena C. 8/3/2016
Dan B. 8/1/2016
Lindsay M. 8/1/2016
Joyce B. 7/13/2016
Kristy B. 7/12/2016 Happy 6th Birthday Max!!!
Erica W. 7/12/2016 Happy Birthday Max!
Dan B. 7/1/2016
Lindsay M. 7/1/2016
Dan B. 6/1/2016
Lindsay M. 6/1/2016
Dan B. 5/1/2016
Lindsay M. 5/1/2016
Marilyn L. 4/11/2016
Ellis W. 4/11/2016 Run, Danielle, Run for MAX!
Randall F. 4/11/2016 Love you Max!
Donna A. 4/10/2016
Danielle B. 4/9/2016 Match for April's half marathon, in honor of Max!
Sal F. 4/9/2016
Dan B. 4/7/2016 Match for March's 1/2 marathon!
Dan B. 4/1/2016
Lindsay M. 4/1/2016
Danielle B. 3/20/2016 Match for March's half marathon!
Jeff C. 3/20/2016
Marilyn B. 3/4/2016
Marilyn B. 3/4/2016
Marilyn B. 3/4/2016
Alan S. 3/2/2016
Chelsea F. 3/1/2016 Prayers for a cure!
Cathy H. 3/1/2016
Dan B. 3/1/2016
Lindsay M. 3/1/2016
Ryan B. 2/29/2016
Dan B. 2/1/2016
Lindsay M. 2/1/2016
Tommy S. 1/25/2016
Virginia V. 1/21/2016 To help the Bafunno Twins fundraising
Dan B. 1/1/2016
Lindsay M. 1/1/2016
Karen L. 12/21/2015
Kristy B. 12/20/2015 Merry Christmas
Joyce B. 12/20/2015
Dan B. 12/1/2015
Lindsay M. 12/1/2015
Dan B. 11/1/2015
Lindsay M. 11/1/2015
Marilyn B. 10/4/2015 Tastefully Simple Proceeds
Joe M. 10/4/2015
Danielle B. 10/4/2015 Danielle's Race for a Cure
Dan B. 10/1/2015
Lindsay M. 10/1/2015
Danielle B. 9/27/2015 Matching $50 race fee
Dan B. 9/1/2015
Lindsay M. 9/1/2015
Dan B. 8/1/2015
Lindsay M. 8/1/2015
Tena C. 7/22/2015 Five for now and five to grow on!
Kathy F. 7/21/2015 Double your birthday fun!
Sal F. 7/21/2015 Happy Belated Birthday Max, Love the Frangiamore family
Ryan B. 7/20/2015 Happy birthday Max!!!
Kelly T. 7/20/2015 Happy 5th birthday Max!!!!!!
David S. 7/18/2015
Claudia S. 7/17/2015 Happy Birthday, Max!
Connie T. 7/17/2015
Madison F. 7/16/2015 Happy 5th Birthday, Max!!
Gwen E. 7/16/2015
Patricia K. 7/16/2015
Timothy C. 7/16/2015 HAPPY BIRTHDAY, MAX!!!!!!
Corinne W. 7/16/2015 Happy birthday!
Samm L. 7/16/2015 Happy Birthday, Max!!
Judi M. 7/16/2015 Happy Birthday Max!
Cindy J. 7/16/2015 Happy Birthday, Max!
Hyland 7/15/2015
Marilyn B. 7/15/2015 Happy Birthday Max!
Kristy B. 7/15/2015 Happy 5th Birthday Max!!!
Julie H. 7/15/2015
Dan B. 7/1/2015
Danielle B. 6/30/2015 Match for my May & June race fees
Marilyn L. 6/8/2015
Valerie D. 6/1/2015 in Memory of Peggy Hottenstein
Dan B. 6/1/2015
Dan B. 5/1/2015
Danielle B. 4/24/2015 $25 match for my April race fee!
Debbie P. 4/22/2015 Debbie Pavone
Gary C. 4/7/2015 Birthday gifts from Pat Rogan's 62nd birthday.
Danielle B. 4/4/2015 Donation from Dan & Peggy Hottenstein!
Marilyn B. 4/4/2015 Matching Gift - Danielle's Race
Marilyn B. 4/4/2015 Profits from Tastefully Simple Sales
Tommy S. 4/3/2015
Dan B. 4/1/2015
Marilyn B. 3/22/2015 Matching gift for Danielle's race
Eric F. 3/21/2015
Danielle B. 3/21/2015 Danielle's match to her March half-marathon!
Carol L. 3/21/2015
Paul Y. 3/21/2015
Karen Z. 3/17/2015 Happy Birthday Pat Rogan!
Karen L. 3/17/2015
Marilyn L. 3/17/2015
Gene R. 3/17/2015
Donna A. 3/6/2015
Marilyn B. 3/6/2015 Happy birthday Pat Rogan
Deborah B. 3/4/2015 For two very special Aunties!
Dan B. 3/1/2015
Jeff C. 2/26/2015 Our match For Danielle's match for runs in January, February, & March.
Marilyn B. 2/23/2015 I matched Danielle's match!
Danielle B. 2/22/2015 Danielle's match to her February race fee!
Cindy J. 2/22/2015 I can never resist a matching offer fundraiser :)
Dan B. 2/1/2015
Marilyn B. 1/28/2015 Marilyn's match to Danielle's match!
Danielle B. 1/27/2015 Danielle's match to her January race fee!
Dan B. 1/1/2015
Dan B. 12/1/2014
Marilyn B. 11/2/2014 Proceeds from Tastefully Simple sales
Dan B. 11/1/2014
Danielle B. 10/31/2014 Birthday donation, THANK YOU for the support!
Monica L. 10/15/2014
Anonymous 10/15/2014
Sal F. 10/13/2014
Dan B. 10/1/2014
Theresa C. 9/23/2014 Happy birthday, girls. Max is lucky to have two amazing aunts!!!!!
The Benevity Community Impact Fund US 9/23/2014
Marilyn L. 9/22/2014
Erin B. 9/21/2014
Marilyn B. 9/20/2014 Happy Birthday Danielle!
Cindy J. 9/19/2014
Rachel L. 9/14/2014
Dan B. 9/1/2014
Andrew O. 8/25/2014
Bob B. 8/24/2014
The Benevity Community Impact Fund US 8/23/2014
Melissa C. 8/23/2014
John L. 8/23/2014
Danielle H. 8/23/2014
Erica B. 8/22/2014
Jeff P. 8/21/2014
Patrick O. 8/20/2014 Ice Bucket challenge!
Joe F. 8/20/2014
Adam B. 8/20/2014
Randall F. 8/19/2014 my ice bucket also.
Danielle B. 8/19/2014 My ice bucket challenge donation!!
Dan B. 8/19/2014 This will buy a bucket of ice water for Marilyn
Jessica P. 8/19/2014
Jeff and Annette H. 8/19/2014
Patricia K. 8/19/2014
Robert K. 8/19/2014 How could I miss out on this? Love you all!!! And its a great cause
Michelle B. 8/19/2014 Ice bucket challenge!
Daniel R. 8/18/2014
Dan B. 8/1/2014
Dan B. 7/28/2014 In memory of Lucas Kerker family
Jennie W. 7/14/2014
Dan B. 7/1/2014
Richard H. 6/2/2014
Dan B. 6/1/2014
Stephen B. 5/27/2014
The Benevity Community Impact Fund US 5/27/2014
Nikki K. 5/13/2014
Katie I. 5/5/2014
Maria H. 5/4/2014 Go Michelle! You'll do wonderful.
Mark M. 5/2/2014
Dan B. 5/1/2014
Marilyn B. 5/1/2014 Proceeds from Tastefully SImple!
Zane M. 4/28/2014
Harry N. 4/28/2014
Frank J. 4/28/2014
John L. 4/28/2014
Robert P. 4/28/2014
Valerie T. 4/27/2014 Great Job - Love you!!
Andrea S. 4/27/2014
Sarah K. 4/26/2014
Joe F. 4/26/2014 We love you!
Patricia R. 4/26/2014
Marc L. 4/25/2014 Run like the wind!
Wilfred R. 4/25/2014 Thank you for doing this and raising awareness!
Rachelle L. 4/25/2014
Madison P. 4/25/2014 Good luck this weekend!
Patrick O. 4/25/2014 For your nephew Max B dot!
Jackie L. 4/24/2014 Good Luck Danielle! You and your sister are great aunts!!!
Robert K. 4/24/2014 Great Job Girls!!!! This is a great thing you are doing!!! Love and miss ya!!! Rob and Colette
Bob B. 4/24/2014
Joseph C. 4/23/2014 Good luck girls! I love you both!
Abby P. 4/23/2014
Jeff C. 4/23/2014 for Danielle Bafuno's Run for A-T
Amy H. 4/22/2014 Good luck, D-Baf and Twinny! You guys have the biggest hearts. :) xoxo
Shannon G. 4/22/2014
Marshall B. 4/21/2014
Daniel W. 4/18/2014
Anthony M. 4/18/2014
Richard N. 4/17/2014 Good Luck and God Bless you
Valerie P. 4/17/2014
Samantha M. 4/14/2014 Keep up the great work! Happy running!
Doanld M. 4/14/2014
High Street Fitness 4/11/2014
Patricia M. 4/10/2014
Erin B. 4/10/2014 You both are doing a great thing for your nephew. Love you both!!
Joe C. 4/9/2014 Have a great run, girls.
Victoria C. 4/9/2014
Grant G. 4/9/2014
Dana D. 4/8/2014
Bruce H. 4/8/2014
Donald W. 4/8/2014
Lauren B. 4/8/2014
Erika I. 4/8/2014
Steve R. 4/8/2014
Eric S. 4/8/2014
Jennifer C. 4/8/2014
Glenn E. 4/7/2014
Tarsha W. 4/6/2014
Carol L. 4/6/2014 Blessings to the Bafunno twins for their tireless support of their sweet nephew!
Eric S. 4/3/2014
Roger S. 4/3/2014
Norman F. 4/3/2014
Jayne A. 4/2/2014 Wonderful young ladies to do such a caring thing.
Dan B. 4/1/2014
Rebecca E. 4/1/2014 I'm a friend of Lauren's and was moved by your story. Wishing you all this best in this!
Sal F. 3/30/2014 This is a great thing you are doing for Max. He is a great little boy.
The Frangiamore Family
Deborah B. 3/29/2014 Thoughts and prayers are with you both
David S. 3/28/2014
Jenna S. 3/27/2014
Kathleen T. 3/27/2014
Mission Helpers of the Sacred Heart 3/27/2014
Daniel L. 3/27/2014
Anna V. 3/26/2014 You go girls! 3 diva snaps :)
Theresa K. 3/26/2014
Anonymous 3/26/2014
Adam B. 3/25/2014
Tena C. 3/25/2014
Neil F. 3/25/2014
Christie G. 3/25/2014 Lauren Reached out to us! She loves him and appreciates you both very much! C&A
Eric L. 3/25/2014 Friends of Beth and Adam since college. I love you guys...
Youngstown Kenworth, Inc. 3/24/2014
Randall F. 3/24/2014
Linda C. 3/24/2014
Kevin K. 3/24/2014
Jessie S. 3/23/2014 Love that little boy!!!
Amy S. 3/23/2014 Thinking of you Max! Love, Bob Amy Ella and Ava Schneider
Roxanne W. 3/22/2014
Jessica V. 3/22/2014
Maria E. 3/22/2014
Mandy C. 3/22/2014
Lindsay M. 3/22/2014 Happy Running Girls!!
Kristy B. 3/22/2014
Susan C. 3/21/2014
Bradley G. 3/21/2014 Lauren reached out and I am happy to help Max. He has a great family.
Owen Z. 3/20/2014
Andrew B. 3/20/2014 Lauren reached out to me about this, she is a loving and caring Aunt
Theresa C. 3/19/2014 Thinking of sweet Max.
Frank V. 3/19/2014 Good work girls. Love Grandpa
Kelli F. 3/19/2014
Connie T. 3/17/2014
Roger T. 3/17/2014
Angelo L. 3/17/2014
Linda P. 3/17/2014
Frank S. 3/17/2014
Terry M. 3/17/2014
Mission Helpers of the Sacred Heart 3/17/2014
Marilyn L. 3/17/2014
Tommy S. 3/17/2014
Michael C. 3/10/2014 Wishing all of you the best of luck!
Valerie D. 3/9/2014
Jeffrey V. 3/8/2014
Marilyn B. 3/7/2014 We are proud of you both
Dan B. 3/1/2014
Kristen N. 2/27/2014 Marilyn Bafunno is my co-worker and she shared with me about your fundraising! Good Luck!
Thomas D. 2/24/2014
Donna A. 2/23/2014
Holly R. 2/20/2014
Dan B. 2/1/2014
Marilyn B. 1/22/2014 Donating profits from Tastefully Simple sales!
Dan B. 1/1/2014
Dan B. 12/5/2013 Thank you Michelle and Danielle
Dan B. 12/5/2013
Dan G. 12/4/2013
Marilyn B. 12/4/2013 Donating profits from Tastefully Simple sales
 
 
Support Board
DateMessageAuthor
4/27/2014Great Job - Love Mom & BudMom & Bud
3/26/2014So proud of you both,Max is lucky to have such a great family and so much love showered on him.Aunt Theresa & Uncle Bob
3/25/2014We are so proud of our family! We love you! Mom and DadMarilyn and Dan
3/21/2014Thanks to my wonderful sister-in-laws! And thank you to all of our wonderful friends and family for your support! It means the world!Beth
This board has 4 messages on 1 page
 
 
slideshow
Photos
Goal:$18,000.00
Raised:$17,416.75

Shop

Contact

5300 W. Hillsboro Blvd., Suite 105
Coconut Creek, FL 33073 USA

800.5.HELP.A-T (800.543.5728)
954.481.6611

Connect

Twitter

Privacy Policy      Disclaimer
Copyright © 2015 A-T Children's Project