I was first introduced to this rare disease A-T through a fellow ultra runner named Tim Borland. He explained to me how it is affecting 1 out of 40,000 children and there is no known cure. I couldn't help thinking of my boy and what if he had A-T. How difficult would it be for me to watch my son go through this. To have my son appear normal and healthy thinking he was going to be like any other kid and then all of a sudden without any warning have difficulty walking or to seem have no control of his body actions. The whole time being helpless, wanting to take away all his pain, to fix it and make everything better, but can’t.
Knowing there is currently no cure for this illness created a drive in my heart to do something about it. This year I am running in 3 different runs. However I am not doing it for me, I am doing it to raise money in hopefully finding a cure for this disease. Help us find life-improving therapies and a cure for A-T (ataxia-telangiectasia).
On the right are pictures of Wyatt Watson and his family. Wyatt is 5 years old. He was diagnosed at 2 as he was a "wobbly" walker. He continues to be very wobbly and his speech is delayed all a result of having difficulty controlling his muscles, but other than that he is a typical 4 year old. He loves riding his bike, playing ball with his dad, and racing his cars around. He truly has a bright and happy personality. He works so hard at things and never gives up.
Please continue to logon to this page for currant weekly updates on how my training is coming and please dont forget to donate no donation is to small.
Help us find life-improving therapies and a cure for A-T (ataxia-telangiectasia).
As many of you know, last December I attempted to run The North Face 50 Mile Endurance Challenge trail run in the Marin Headlands. Due partly to my inexperience, I over packed and started at too quick of a pace, I burnt out early. For those reasons I was unable to complete the 50 miles in the allotted time. However, I did run a total of 38 miles which is a personal best for me! Thanks to all of you who have supported me in this physical challenge! Also, many thanks to you and the many generous sponsors, I had set a goal of raising $1,000; with you help we raised $1,350 for the A-T Foundation which is working to find a cure for a rare disease called Ataxia Telangiectasia. One of the interesting things I learned through this journey is that this disease has many symptoms that are similar to other muscular illnesses and childhood cancers. If/when a cure is found it will not only help children with A-T but will likely help many other children with debilitating illnesses and/or cancers.
In preparation for next years run, I have signed up to run a few races this spring and summer. First, I will be attempting to run 50 Kilometer at the Quicksilver Mines in south San Jose. I am excited about this run because I grew up hiking, biking and running in these hills. In fact I even got lost out there and the rangers were sent out looking for me!! Fortunately I was found and lived to tell the tale. Please pray and I prepare for this challenging run, happening on May 9th. Pray that I will not get lost, or injured! I will also be running a race over Labor Day weekend and then will have a few months to train for the big race again next December.
Running Update Quicksilver 50k
I did it! Well after a long 9 hrs and 15 minutes of running I finished 32 miles of rough terrain. This wasn't an easy challenge the run consisted of 1600 ft of elevation gain, steep up hills, downhills, rough rocky terrain and if that wast enough they decided to throw a mound of rocks on the course that I had to climb. It was so tough that I had considered tapping out halfway through the course however I kept saying to myself this was for Wyatt and his family who desperately needed a cure. I almost did at one point until I saw my family at mile 17 who volunteered to be my crew. It was such a great relief to see Wendy and Ethan (though he was asleep). They helped ice me down and refill my fluids and give me the encouragement that I needed to move forward then sent me on my way. After the 26 mile mark self doubt started to creep in again saying you need to stop, your to tired, your to hot, theirs to many hills. I could have easily gave in if it wasn't for another runner passing me, (which I cannot stand) so I decided to toughen up and finish strong. When I crossed that finish line and held my victory beer in my hand all the pain temporarily vanished and I felt proud and blessed to have beat that course unscathed (except for the 5 blisters and soon to be missing toenail)
On the right you will see some mew pictures of Wyatt and my 50k I just completed
Run for a cure 2015 Update
These last couple of weeks have been crazy. With us moving into a new place and all the responsibilities as a new manager. I have not been able to run or train as much as I would liked to. However I have not given up. I have two weeks until the my training run at the Stinson Beach Marathon on Halloween. For which I am dressing up as Superman. And 6 weeks until the TNF 50 mile in the Marin Headlands. Please support me by donating your time in prayer and encouragement for these upcoming events. So far, I have raised a total of $365 for A-T that is almost half my goal of $1000. If you would like to donate for this cause please go to the website atcp.org/lucasashe. Also, if you would like to run with me or join our cheering squad, for either of these events, you can contact me via phone or email. Help me to find a cure. I Run for A-T Kids Who Can't!
Stinson Beach Marathon Update
The main purpose of this run was to get an idea of where I am at in my training. This trail covers a significant portion of my 50 mile in December, especially the dreaded Steep Ravine trail that caused me to not finish. Here are some things I learned from this training run. First, the course is absolutely beautiful. This particular section goes from the ocean to being surrounded by majestic coastal red woods in a manner of minutes. Next, I have improved tremendously on the steep ravine trail. Where as before it took me 90 minutes to complete the section of the course, this time it took me 40 minutes! Finally, I really need to follow my nutritional plan. Though I made it up Steep Ravine in a personal best, I also depleted all my energy and did not replenish when I should have. For this reason I could not get my body to move like it normally does and had to cut my run short to a half marathon. In other words Superman found his Kryptonite.
Thank you for taking the time to read about my journey and consider joining me in support of this good cause.