Global A-T Family Data Platform

The Global A-T Family Data Platform is a patient-driven effort overseen by A-T families and experts worldwide through which health information, genetic and potentially other types of data about people with A-T can be shared with researchers. This platform will enable researchers to access important patient data from around the world quickly, securely and efficiently, hopefully leading to new discoveries.

Researchers should request access to the data using this Data Access Request (DAR) form which includes assurances associated with the use of these data sets. Our Data Access Committee (DAC) will review the DAR form submitted by the researchers and will either approve or disapprove data access.