Rylie Rahall is a fun-loving 11-year-old from Southern California with A-T. Every February, she and her family host a Rare Disease Day event at her school. When it was clear that the pandemic was going to make an in-person Rare Disease Day event impossible this year, the Rahalls pivoted to a virtual workout class. The class is free with a suggested $5 donation to the A-T Children’s Project at the end and is being promoted on Facebook and Instagram.
Virtual events are a great way to expand your reach. Rather than reaching only the school community, Rylie’s supporters can now celebrate Rare Disease Day with her from anywhere. Hosting this virtual workout class for Rare Disease Day also maintains continuity for the Rahalls’ supporters. This reminds supporters that even though there’s a pandemic, we are still fighting just as hard for life-improving therapies and a cure for A-T.
This is what grassroots fundraising can look like during a pandemic!